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Normal Was Never Cool: Inception of Perception [Aimee Mullins]

Posted: 14 Nov 2009 09:00 AM PST

e71d256ac3master.jpg Normal Was Never Cool: Inception of Perception [Aimee Mullins]

Last year I met a beautiful five-year-old child, who had been born with neurofibramatosis (NF), causing her left leg to have extremely brittle bones.

For nearly the first year of her life, her parents and doctors were unaware of the NF, and the brittleness had contributed to multiple bone fractures of the lower leg, unbeknownst to anyone. These early bone breaks resulted in her left leg being seven centimeters shorter than the other, and as a bright, precocious and athletic child, she adapted to her leg imbalance incredibly well. I felt like I could have been looking at myself as a 5 year old. Unlike me, however, who didn’t have a clue about an aesthetic style in outward appearance until college, she already had been bitten by the fashion bug, and was particularly excited by the prospect of a new holiday dress or her first day of school outfit. Her source of distress lay in the fact that the vast majority of little girls’ shoes were off-limits for her, as there were only a few companies that made shoes that could be adapted with a special lift to even out her walking planes. These shoes had to work within the structure of the external leg brace she grew up wearing.

Her parents were impressive in their own right, first by not imposing labels or limits on her, and then making this medical journey of decisions for their child a collaborative process that included her, appraising her of new options in technology that had arisen as they became aware of them. Unfortunately, technology in her case—a successive series of operations to try and stretch the brittle leg using internal rods and pins to fuse the bone—hadn’t progressed as fast they would have hoped. After the first two of what they knew would be many surgeries, her parents and doctors had made the decision to proceed with this rod approach until she reached five years of age. Then they would re-evaluate the process, considering any advancements in technology. If it hadn’t advanced past this type of treatment, they would consider “other options.”

Shortly after her sixth birthday, her mother told me, “She downloaded all these images of you off of the internet, and she’s always asking 'when, when can I get rid of my bad leg, when can I get a new leg?’” She even did her show-and-tell at school about prosthetics!

That is decidedly not what I would have expected a six-year-old to do.

Amazingly, because of technological progress in prosthetics, amputation was now an attractive option for this family. Amputation and subsequent fittings with prosthetics was simply seen as liberation from a leg that didn’t function.

After a few months, the child’s mother called me, telling me that she, her spouse, and the doctors collectively made the decision to amputate, and that they would be telling the child this news that very night. My reaction was visceral and very surprising to me: I felt my breath grow short and my heart pounded, and I felt ill as waves of stress and worry pummeled me. I panicked at what role I might have played in this chain of events, and how I couldn’t guarantee that this child would have anywhere near the same experiences I had had as an amputee? I found myself having doubts I had never had about myself or, indeed, most any amputee: “Would she be okay? Would her life be happy and full of opportunity?”

I spoke to the mother one last time before the surgery, and she informed me of the surgeon’s decision to do an amputation through the ankle, the common thinking to be to “save as much of the flesh and bone leg” as possible. I couldn’t be sure about this and hesitated even mentioning it, but I asked the mother if she had consulted with the child’s would-be prosthetist about this “Syme’s” style amputation, because I had heard reports of resulting limitations in people being able to obtain the latest prosthetic technology.

Ironically, by keeping more of the residual limb, you negate more options for different prosthetics, as there is no physical room to put the components (think of the shock-absorber and spring leg). An incredible facet of this story for me was learning that, at no time before this rather momentous surgery of this child, did the pediatric surgeon and the prosthetist ever have even one conversation.

Her mother investigated with the prosthetist who confirmed that, by leaving as much of the limb as possible, the child wouldn’t be able to get any of the legs in the images she downloaded from the web. The surgeon was shocked to learn this, and had never considered that it might actually be better to amputate a few inches higher, increasing the future mobility options of the child.

This past April, while walking through a street fair hosted by the Tribeca Film Festival, I felt a tug on my shirt. It was this little girl, 6 months after her amputation, with colored paints on her face and in her hair, and a plastic tee-ball bat in her hand. She was jumping up and down (post-cotton candy) and she wanted to show me her new High School Musical 3 “tattooed” leg. She asked me if I knew Zac Efron and “could I get him to autograph her leg?” (I don’t, but I’m working on hooking this up.)

77780e8694reds.jpg Normal Was Never Cool: Inception of Perception [Aimee Mullins]

She pulled me a few meters over to the batting cage stand, where she deftly used her prosthetic leg to press the foot pedal, launching a whiffle ball pitch that she smacked as hard as she could. On her feet, she proudly sported Mary Janes covered with red sequins. Seven months ago, she was as active as a child could be with a leg brace and tremendous pain; here, she ran and jumped and cartwheeled and tackled her little brother, who tackled her back. Even I, who rarely doubts the incredible ability of human beings to adapt to their adversity, was awe-struck.

I wondered how her childhood, her adolescence, her college years would collude to shape how she saw herself. Would she struggle through various identities, wanting to be “normal” as I did, only to find eventual freedom of self-expression in the absence of normalcy? Barring puberty, which is probably awful for everyone, I think this girl is going to skip over ever wanting to be “normal.” Why be normal when you can have Zac Efron and Friends staring up at you everyday from your ankle?

The generation of children growing up today has a distinct advantage in this realm of identity, thanks to their daily interaction with the internet and video games. It’s commonplace for them to create avatars and parallel representations of themselves, and they see their ability to change, transform, and augment those bodies to best suit their surroundings as beneficial.
8802dab52awownew.jpg Normal Was Never Cool: Inception of Perception [Aimee Mullins]

That kind of fluid thinking was once solely the domain of those whose imaginations were heavily influenced by both technology and science fiction. Talk about seeing evolution speed up before your eyes. My being able to embrace the art in my artifice, to change my identities—how I perceive myself and how others respond to that perception — has profoundly changed the way I see the world and my opportunities in it. But I didn’t possess that ability at age six.

I keep thinking of how long it takes for most of us to go through the process of first accepting ourselves as we are, strengths and weaknesses, then celebrating that self and starting to have fun with your strengths and weaknesses, then transforming ourselves as architects of own our identities, redefining what our strengths and weaknesses actually are. I think kids today are able to do this faster than previous generations.

I’ve noticed a progression from how kids used to respond to my wooden legs to responses toward a prosthetic limb today. Quite simply, the fear-as-first-response has all but disappeared; I do not experience children who are afraid to meet me and in fact, I haven’t recently met any child who, when I’m sporting obvious prosthetics like the RoboCop legs, wasn’t drawn like a magnet to them, accompanied by a list of very astute questions.

For the most part, it’s adults who rein kids in, in an attempt to not have them stare or offend with their natural curiosity.

But curiosity is necessary; it is the foundation of imagination and innovation. It’s tremendously important to allow children to see the diversities of human experience and understand how their own lives relate to it, so we can acknowledge how much more similar we are as human beings than different…even if what makes us different is where we discover and engage our rare and valuable qualities, offering them to society.

ba8c1928c6rewnew.jpg Normal Was Never Cool: Inception of Perception [Aimee Mullins]When I was a child, I watched plenty of episodes of Star Trek: The Next Generation. Where some see Professor Xavier, I secretly know he’s Captain Jean-Luc Picard. And thanks to airport security, I admit that I often daydream of being able to be molecularly transported around the world. I think about that other little girl and wonder to what extent her ability—and that of her peers—to google the word “prosthetic” and come up with tons of imagery to inspire their imaginations marks a marvelous shift in our society.

There’s plenty of evidence that connects our visualization of what we dream to be possible to what we eventually create as a new reality. Gene Rodenberry’s imagination in Star Trek and that of Arthur Clarke’s, Marvin Minsky’s and Stanley Kubrick’s in 2001: A Space Odyssey had a direct impact on funding certain projects at NASA because scientists and researchers had “seen” this whole imaginary world, and they sought to make it real.

For my own childhood inspiration, I had the Bionic Woman and Six Million Dollar Man (to this day, the somber phrase “we can rebuild him” makes my heart pound wildly!), and even Inspector Gadget cartoons made me draw third grade pictures of legs with rocket jet packs flaming from the heels.
47e7ff36622 0003.jpg Normal Was Never Cool: Inception of Perception [Aimee Mullins]

This “entertainment” not only asks questions but encourages more of them, replete with inherent timelines for answers: “When are we going to do molecular transport? We’ve been seeing it for forty years on Star Trek!” It’s within the scope of our imagination.

I remember in high school seeing Forrest Gump when they convincingly transformed Lt. Dan—Gary Sinise, an actor with two flesh and bone legs—into an amputee. A budding actress, I thought “Oh my God, if they can do this with CGI, couldn’t they do the opposite? Could they create an image of me on screen with full flesh and bone legs?” I was intrigued by the imaginary visual of a different version of myself, and I suspect it provided something tangible when asked if now, at this point in my life, I would trade my prosthetics for flesh and bone legs. (I wouldn’t.)

8722b43147carved.jpg Normal Was Never Cool: Inception of Perception [Aimee Mullins]

The transformative power of films lay in engaging how I imagined myself and my “realities,” giving me license to re-imagine them as I desire. Now that many people, starting from an early age, are creating and choosing their own identities in a virtual world—or in multiple virtual worlds—this self-malleable perspective has a lot of power. People can align themselves with global groups of their own choosing, and see themselves as their ideal selves without many of the social constraints present just a generation ago.

Although it took surviving junior high, I evolved myself to the point where I decided against measuring myself to “normalcy,” deciding instead to self-determine what was cool, who was cool, and the transformation subsequently happened in how other people treated me. “Cogito, ergo sum.” It’s one of the simplest truths we revealed for ourselves, right? “I think, therefore I am.” If you think you can pull it off, you can. Or as Henry Ford put it, “whether you think you 'can’ or you think you 'can’t': either way, you’re right.”

I’d postulate that technology is innately teaching today’s children that very same lesson, and they’re learning it much earlier.

This confident perspective, one perpetually shifting from imagination to invention—be it a personality, a human figure or a new technology—would not have happened a hundred years ago. If I had been born back then, I doubt I would have been enabled by society to do much, even with a self-ignited fire of human spirit, as being a woman was as much of a disability as anything.

Today, I’m grateful for all of my strengths and weaknesses, changing and morphing as they are, and I’m especially grateful for technology’s advancements to prosthetics, as my life has been successful because of having had them, not in spite of having had them.

Aimee Mullins is an athlete, speaker, actress and model we met at TEDMED. She’s also the guest editor for our theme week This Cyborg Life. Read her bio here.

[Lead Image:
Matthew Barney
CREMASTER 3, 2002
©2002 Matthew Barney
Photo: Chris Winget
Courtesy Gladstone Gallery]

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Normal Was Never Cool: Inception of Perception [Aimee Mullins]

MacMall Early Black Friday Sale, Discounted Hardware Galore [Dealzmodo]

Posted: 14 Nov 2009 08:30 AM PST

London Flash: The Storm Circuit MK2 watch

Posted: 14 Nov 2009 08:00 AM PST

CircuitCreated by the design firm STORM of London, the Circuit MK2 is an LED watch integrated into a stainless steel bracelet. While it looks like it might have a bit of a learning curve, it definitely has a unique look that should stand out from your standard analog dial or digital display.

It’s a fairly basic watch, there’s no chronograph functionality (obviously) but it does display the time and date. Sure it’s not quite as bling as a Tokyoflash watch, but this one you might actually be able to read. Retail price starts at $200.

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London Flash: The Storm Circuit MK2 watch

The Hills Are Alive with the Sound of… the Hills [Terrafon]

Posted: 14 Nov 2009 07:40 AM PST

4109c2bda7rafon1.jpg The Hills Are Alive with the Sound of... the Hills [Terrafon]The Alunda Church Choir wanted to see what their giant earth phonograph, the terrafon, would sound like if they dragged it across the ground. Unsurprisingly, it sounds like dirt being plowed. But louder.

Occasionally, nature’s music of scraped soil and rocks is augmented by a loud creak from the giant gramophone horn. If you must know what that sounds like, check out the surreal 11+ minute video.

Harvest by Alunda Kyrkokör (2009) from Olle Corneer on Vimeo.

The “Harvest” performance was part of the Volt Music Festival in Sweden. The group wants to bring the terrafon to other croplands soon, so if you hear what sounds like a really loud plow in your backyard, go give the team a hand. That thing looks heavy. [Create Digital Music via Inhabitat]





The Hills Are Alive with the Sound of... the Hills [Terrafon]
The Hills Are Alive with the Sound of... the Hills [Terrafon]

The Hills Are Alive with the Sound of... the Hills [Terrafon]

The Hills Are Alive with the Sound of... the Hills [Terrafon]

The Hills Are Alive with the Sound of... the Hills [Terrafon] The Hills Are Alive with the Sound of... the Hills [Terrafon] The Hills Are Alive with the Sound of... the Hills [Terrafon] The Hills Are Alive with the Sound of... the Hills [Terrafon]

The Hills Are Alive with the Sound of... the Hills [Terrafon]

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The Hills Are Alive with the Sound of… the Hills [Terrafon]

Cranberry DiamonDisc: the $35 DVD that’ll last longer than your ghost

Posted: 14 Nov 2009 07:40 AM PST

0ebb114917ondisc.jpg Cranberry DiamonDisc: the $35 DVD thatll last longer than your ghostWe’ve seen outfit after outfit trumpet their long-lasting optical storage wares before, but Cranberry seems different. Rather than promising that whatever miracle they’ve just unearthed will be available “in the very near future,” this company is selling its wonder product right now. The so-called DiamonDisc — which is reportedly constructed from “diamond-hard stone” — is designed to store precious memories for 1,000 years or more, and it’s even built to withstand “temperatures extending up to 176 degrees Fahrenheit as well as UV rays that would destroy conventional DVD discs.” Unfortunately, each disc holds just 4.7GB of information, and each one will run you $34.95 if purchased individually. Oh, and it’s only playable on “most” regular DVD drives, so across-the-board compatibility seems less than likely. The more we think about it, the more sense that whole “just carve it into stone for future generations to see” mantra makes. Kudos, cavemen.

[Via DailyTech]

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Cranberry DiamonDisc: the $35 DVD that’ll last longer than your ghost originally appeared on Engadget on Sat, 14 Nov 2009 11:40:00 EST. Please see our terms for use of feeds.

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Stylophone Beatbox

Posted: 14 Nov 2009 07:26 AM PST

stylophone2 Stylophone BeatboxAre you musically inclined? If so, how many gadgets out there are musical enough for you, or are you one who wants to have something very different apart from the standard piano and drum kit? Enter the Stylophone Beatbox which opens up a whole new world of percussion goodness.

The Stylophone Beatbox boasts three different sound modes: Drum Kit, Beatbox and Bass Stylophone. There's also a scratch function that allows you to mix your sounds, record them and play them over your beats. You can even adjust pitch and tempo. Think of it as a portable beatbox with added irony. But what about those sounds? Prepare to be impressed because this bonkers doodah contains samples created by champion human beatboxer MC Zani. No, we haven't heard of him either but we're told he's da boom and da lick. Or something like that.

Not only do you get to irritate those around you who do not appreciate sounds coming out from a beatbox performer, you can do so for a relatively low, low price of £19.99.

3222398f5buy now.gif Stylophone Beatbox
Coolest Gadgets UK – For all your UK centric tech and gadget news.
[ Stylophone Beatbox copyright by Coolest Gadgets ]

Stylophone Beatbox

Stylophone Beatbox

Stylophone Beatbox Stylophone Beatbox Stylophone Beatbox Stylophone Beatbox Stylophone Beatbox Stylophone Beatbox

Stylophone Beatbox

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Stylophone Beatbox

webOS 1.3.1 Available Now [Palm]

Posted: 14 Nov 2009 06:50 AM PST

NSMB Super Skills Trailer

Posted: 14 Nov 2009 06:42 AM PST

It’s Google’s world and handset makers just live in it

Posted: 14 Nov 2009 05:44 AM PST

rat-pack1

When the Motorola Droid launched this month everyone was amazed that a company so down on its luck was able to put together a well-designed phone running a powerful, “brand new” OS. The whole package – hardware, software, and marketing – seemed flawless. In fact, phones running Android 1.5 now look hopelessly outdated and with 2.0’s gesture, CDMA, and search support you’d wonder why handset manufacturers like HTC, LG, Kyocera, and Samsung are using 1.5 at all.

The reasons have more to do with Google than any decision on the carriers’ part. In fact, according to a source close to the handset business, Google’s Android team directly assisted Motorola and Verizon in building the Droid’s software from the ground up and is currently assisting another, unknown, handset maker in Korea to create a finely-tuned hardware and software combination. Most important, however, is that this is sort of assistance most manufacturers do not receive and, in the end, they are dinged for running an “older” version of Android.

These two bits of information – that Google assists certain companies in making specialized hardware and software and that Google is now helping another manufacturer to the detriment of others – sounds like sour grapes. However, the original vision for Android (as it was understood by lay users like myself) was an open, free OS available to multiple manufacturers and carriers. This preferential treatment is an anathema to that thought. This is akin to Linus Torvalds building a special version of Linux just for a commercial partner and refusing to release it until that partner has milked its value.

While it is clear that some manufacturers like HTC are keeping a stiff upper lip and running their special special UIs over 1.5, reviewers consistently ding manufacturers for running 1.5 while the Droid is given a pass.

And 2.0 matters. We asked Ross Rubin from the NPD Group about his thoughts on 2.0 and got back a half a book:

Android 2.0 brings refinement and more integration to the operating system, Examples include support for Microsoft Exchange and Facebook, which are the digital contact centers of many people’s professional and social lives. It also brings a revamped and much faster browser, albeit one that Google isn’t yet deriving from Chrome. The other big application improvement is Google Navigation, which it has introduced as a free service on top of Maps. Many carriers, including Verizon, charge for such functionality in other devices. Google is aggressively driving a major update while Microsoft is between major revisions of Windows Mobile.

We asked him why he thought Motorola got 2.0 early. He wrote:

As to why it debuted on a Motorola device, there could be several reasons. Verizon’s subscriber strength and more direct competition with AT&T and the iPhone may have led it to push for Android 2.0 to be more competitive. Or it could be simple product development timetables. Moving forward, HTC will want to put its Sense user experience on top of Android 2.0, which requires development time. Google wants a healthy Android ecosystem and a competitive Motorola contributes to that.

While this desire is absolutely understandable on Google’s part, there is a method to this madness. Google releases major updates on one handset and one handset alone. These updates are then pushed out to other android partners. Case in point:

  • 1.0 went to the HTC G1

  • 1.5 went to the HTC Hero
  • 2.0 went to Motorola

In short, they offer exclusivity to a certain partner in exchange to unfettered access to the design process which, in Motorola’s case, was gravely needed.

Why is there no outcry? Handset manufacturers are deathly afraid of Google. They worry that they will be cut out of the upgrade process and lose access to Google’s Android team.

What needs to be done? In the interest of fairness, all updates should roll out to the general ecosystem before heading to any one carrier. Sadly, this hippie attitude is no good for Google’s business and by creating flagship devices featuring their latest and greatest they ensure forward momentum for the platform. Fairness, it seems, stops at the grade school sandbox.

Again, you can take this as a complaint or a call to action. Android is an excellent platform but Google’s tendency towards “flagship” phones is detrimental to the general ecosystem, especially once the OS falls in along with RIM and Apple as a preeminent smartphone platform.

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It's Google's world and handset makers just live in it

Archos 9 PMP sneaks into the FCC, gets dissected when caught

Posted: 14 Nov 2009 05:43 AM PST

c78de14a2brm eng.jpg Archos 9 PMP sneaks into the FCC, gets dissected when caught

Archos has already made it abundantly clear that its Windows 7-based Archos 9 media player is US-bound, but just in case you were worried over legalities, this FCC filing should crank your stress level down a notch. Best of all, this particular entry includes external and internal photographs, meaning that the camera-toting employees within the deep, dark FCC labs are actually credited with handling the (admittedly messy) dissection. Shocking pixels await you in the read link, so make sure you go in fully prepared.

[Via jkkmobile]

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Archos 9 PMP sneaks into the FCC, gets dissected when caught originally appeared on Engadget on Sat, 14 Nov 2009 09:43:00 EST. Please see our terms for use of feeds.

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